Managing Desmoid Tumor Challenges

EP: 1.Desmoid Tumors: Characteristics and Diagnosis Challenges

EP: 2.ICD-10 Impact: Desmoid Tumor Advances

EP: 3.Imaging and Risks in Desmoid Tumors

EP: 4.Gene Expression in Desmoid Treatment

EP: 5.Multidisciplinary Care for Desmoid Tumors

EP: 6.NCCN Guidelines and Treatment Insights for Desmoid Tumors

EP: 7.Desmoid Tumor Treatment: Bridging Gaps Between Community and Academic Care

EP: 8.Strategic Desmoid Tumor Education and Access

EP: 9.Therapeutic Access and Emerging Treatments

EP: 10.Desmoid Tumors: Impact and Quality of Life

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EP: 11.Managing Desmoid Tumor Challenges

EP: 12.Psychosocial Impact and Pain Management for Desmoid Tumors

EP: 13.Watchful Management and Patient Support for Desmoid Tumors

EP: 14.Empowering Desmoid Tumor Patients: Education and Resources

This is a video synopsis/summary of a Peer Exchange involving Ryan Haumschild, PharmD, MS, MBA; Tony Phillip, MD; Mrinal Gounder, MD; Ravin Ratan, MD, MEd; and Derek Van Amerongen, MD, MS.

Haumschild delves into the management of fatigue, insomnia, and financial difficulties in patients with desmoid tumors with Ratan. Ratan emphasizes the psychosocial toll on patients, acknowledging the distress associated with the diagnosis, independent of physical symptoms. He highlights the importance of recognizing the significance of the tumor to the patient and approaching discussions with sensitivity. The conversation extends to financial challenges, considering the impact on patients’ ability to work. Ratan stresses the need for open communication about out-of-pocket costs, recognizing the potential burden and offering alternative solutions. The segment underscores the multifaceted nature of desmoid tumor care, intertwining medical and psychosocial considerations while advocating for transparent discussions to address patients’ holistic needs effectively.

Video synopsis is AI generated and reviewed by AJMC^® editorial staff.