Desmoid Tumors: Impact and Quality of Life

EP: 1.Desmoid Tumors: Characteristics and Diagnosis Challenges

EP: 2.ICD-10 Impact: Desmoid Tumor Advances

EP: 3.Imaging and Risks in Desmoid Tumors

EP: 4.Gene Expression in Desmoid Treatment

EP: 5.Multidisciplinary Care for Desmoid Tumors

EP: 6.NCCN Guidelines and Treatment Insights for Desmoid Tumors

EP: 7.Desmoid Tumor Treatment: Bridging Gaps Between Community and Academic Care

EP: 8.Strategic Desmoid Tumor Education and Access

EP: 9.Therapeutic Access and Emerging Treatments

Now Viewing

EP: 10.Desmoid Tumors: Impact and Quality of Life

EP: 11.Managing Desmoid Tumor Challenges

EP: 12.Psychosocial Impact and Pain Management for Desmoid Tumors

EP: 13.Watchful Management and Patient Support for Desmoid Tumors

EP: 14.Empowering Desmoid Tumor Patients: Education and Resources

This is a video synopsis/summary of a Peer Exchange involving Ryan Haumschild, PharmD, MS, MBA; Tony Phillip, MD; Mrinal Gounder, MD; Ravin Ratan, MD, MEd; and Derek Van Amerongen, MD, MS.

Haumschild, along with Gounder and Phillip, discusses the crucial topic of the impact of desmoid tumors on patients’ quality of life. Gounder emphasizes the recent recognition of psychosocial and unique challenges faced by patients, especially younger patients. The conversation underscores the importance of recurrent discussions about quality of life, considering pain, discomfort, and psychosocial aspects. Phillip notes that improvements in quality of life serve as a vital indicator of treatment success, even if the tumor mass does not significantly shrink. The discussion highlights the need for a holistic approach to patient care, managing expectations, and celebrating enhanced quality of life as a positive outcome. Overall, the segment emphasizes the multifaceted nature of desmoid tumor impact, urging ongoing conversations about various aspects of patients’ well-being.

Video synopsis is AI generated and reviewed by AJMC^® editorial staff.