Updating the Type 1 Diabetes (T1D) Index each year with the latest data and literature and implementing feedback is important for at least the first few years, said Tom Robinson, vice president of global access at JDRF.
Tom Robinson, vice president of global access at JDRF, discusess plans to update the Type 1 Diabetes (T1D) Index each year.
Transcript
Will the T1D Index be updated annually?
That's the plan, we plan to refresh it once a year. I think for the first few years, at least, we'll be doing 2 things: We'll be refreshing the latest data and latest literature, but we'll also be taking into account feedback that we received and also some of our own ambitions to improve on what we started with.
We want to make it more granular and specific and accurate, like state-level data or take into account genetic backgrounds and so forth. We want to quantify more of the burden of type 1, so the economic burdens, quality of life burdens, psychosocial burdens. I want to have 1 number that's all the ways in which type 1 steals from us in 1 number, that would be a really powerful place to get to. Currently, we have all the physical elements, but I want to have the full suite.
The last thing is we're looking at ways to turn the index into a way that we can track progress. So, using a combination of surveys and direct interviews and industry reports, industry data to say, how is the prevailing standard of care changing in different countries and, therefore, how do we expect that's affecting mortality rates and complication rates and the experience living with type 1, so that we can actually look and say, "Oh, wow, over the last 5 years there's been this incredible progress in India, but we've gone backwards in this state in America." Being able to really hold our own feet to the fire and also the global community's feet to the fire in making progress.
Frameworks for Advancing Health Equity: Urban Health Outreach
May 9th 2024In the series debut episode of "Frameworks for Advancing Health Equity," Mary Sligh, CRNP, and Chelsea Chappars, of Allegheny Health Network, explain how the Urban Health Outreach program aims to improve health equity for individuals experiencing homelessness.
Listen
Tackling Health Inequality: The Power of Education and Experience
April 30th 2024To help celebrate and recognize National Minority Health Month, we are bringing you a special month-long podcast series with our Strategic Alliance Partner, UPMC Health Plan. Welcome to our final episode of this limited series and our conversation with Janine Jelks-Seale, MSPPM, director of health equity at UPMC Health Plan.
Listen
Goal Achievement in T1D Management Boosts Self-Efficacy, Self-Care Among Emerging Adults
May 9th 2024Findings from the FAMS-T1D study demonstrate that structured goal-setting and achievement significantly enhance self-efficacy and self-care in emerging adults who have type 1 diabetes (T1D).
Read More