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Despite the wide variety of rare diseases out there, children and families living with rare disease have one thing in common: they experience diagnostic delays. A new study in Orphanet Journal of Rare Diseases described experiences of seeking and receiving a diagnosis of a rare disease and access to healthcare.

The National Pharmaceutical Council (NPC) today published a letter outlining its thoughts on the FDA draft guidance regarding manufacturer communications about off-label uses of drugs. Today was the final day to comment on the draft before the agency begins to formulate the final version of the guidance.

The American Society of Clinical Oncology (ASCO) has raised concerns that utilization management strategies, especially for high-cost prescription drugs, could reduce patient access.

The study from Finland evaluated the diets of men taking part in a larger study of heart disease risk.

Amendments to the Americans with Disabilities Act in 2009 have not eliminated instances of workplace discrimination against employees with cancer, according to a recently published study.

As technology becomes a standard tool in more professions, the resources used become more accessible, more protected, and provide the ability to more efficiently track progress and changes over time.

The poll surveyed more than 2000 police officers, firefighters, EMTs, lifeguards, and nurses.

JAMA study highlights need for considering patient preferences when choosing between treatment options for prostate cancer.

In a recent blog post, CareMore CEO Sachin Jain, MD, MBA, FACP, and his co-authors wrote that 1 in 5 Americans wants better dental care, but they lack access, often due to finances.

Hospitals in South Carolina that chose to participate in a statewide program implementing a form of the Surgical Safety Checklist developed by the World Health Organization (WHO) saw their death rates after inpatient surgery decrease significantly compared with other hospitals that did not take part, according to a new study.

The approval comes following phase 2 results of 119 patients who participated in the IMvigor210 study.

Policies across federal programs vary, with those serving active military and veterans having fewer barriers than Medicare.

While the Merit-based Incentive Payment System (MIPS) has gone into effect for physicians that participate in Medicare Part B, many questions remain about the practicalities of the program. Physicians could also participate in advanced alternative payment models (APMs), but the vast majority of physicians and physician groups are expected to participate in MIPS.

The researchers say more research is needed to positively link the gut bacteria changes to health outcomes.

A new study has found some concerning gaps in cervical cancer screening among a vulnerable population: women with severe mental illness enrolled in a state Medicaid program.

A study published in The Oncologist concluded that discrepant variant classification in public databases can introduce uncertainty and diminish patient care.

Researchers analyzing pharmacy and medical claims among nearly 94,000 individuals with ongoing statin prescriptions found that prescription filling behavior before and after the index fill had the highest predictive value for continued adherence.

The European Respiratory Society and the American Thoracic Society have conducted a comprehensive review of evidence of managing exacerbations of chronic obstructive pulmonary disease in order to create a guideline of clinical recommendations.

Results from the first 70 days of the Virta Clinic trial suggest the historic dietary approach to management of type 2 diabetes has been all wrong.

A new collaboration between the Duke Clinical Research Institute, Duke University’s MURDOCK Study, and Boehringer Ingelheim Pharmaceuticals Inc will try to better understand how chronic obstructive pulmonary disease progresses in the real world.

A new study published in the New England Journal of Medicine finds that the incidence of diabetes is trending upwards among youth, particularly for racial and ethnic minorities.

The steps taken at CMS seek to curb adverse selection, when consumers wait until they have a health problem to sign up for coverage, then cancel after they receive treatment.

This week, the top managed care stories include an update for prostate cancer screening guidelines; the consequences of conflicting breast cancer guidelines; and Florida seeks work requirements for Medicaid.

Coverage of our peer-reviewed research in the healthcare and mainstream press.

People with high cholesterol, a known risk factor for heart disease and stroke, aren’t sure how to manage their condition, while 47% of people who had a history of cardiovascular disease or stroke had not checked their cholesterol in the past year.