Margot Carlson Delogne

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June 9th 2016

Partnering With Patients to Rapidly Develop a Quality-of-Life Measure in Mycosis Fungoides/SÃ©zary Syndrome Type Cutaneous T-cell Lymphoma

Paul Wicks, PhD Marjan Sepassi, PharmD Gaurav Sharma, PharmD Margot Carlson Delogne

The field of measurement in Mycosis Fungoides/SÃ©zary syndrome type cutaneous T-cell lymphoma lacked a specific quality-of-life measure to describe patient experience or guide treatment decisions. Using an online platform with an engaged patient community, we developed and psychometrically validated a new measure in just under a year.

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