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Episode 17 - Future Outlook on the Orphan Drug Market
As Hugh Fatodu, RPh, MBA, cites the Orphan Drug Act of 1983 and explains how the act has incentivized pharmaceutical companies to expand on research and continue to develop a variety of orphan drugs for the treatment of rare diseases, the panelists explore the evolving orphan drug market and discuss their concerns.
Mr Fatodu explains that earlier-approved orphan drug products are now being used beyond their original indications and states that he is concerned about the quality of the data that is being reviewed to support product usage. He believes that this factor may affect patient exclusivity and drug pricing.
Maria Lopes, MD, MS, and Michelle Petri, MD, MPH, further discuss rising drug costs for newly developed agents and explain how expensive pricing affects a clinician’s choice to administer an appropriate drug to a patient.
The panelists conclude their discussion by reviewing cost versus quality perceptions as the US transitions into a new delivery model of care.
Decitabine, Venetoclax Combo Boosts Survival in Patients With AML and MDS
May 16th 2024Study findings demonstrate that combining decitabine with venetoclax enhances molecular response rates in patients with acute myeloid leukemia (AML) and myelodysplastic syndromes (MDS), correlating strongly with improved clinical outcomes and overall survival.
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Frameworks for Advancing Health Equity: Urban Health Outreach
May 9th 2024In the series debut episode of "Frameworks for Advancing Health Equity," Mary Sligh, CRNP, and Chelsea Chappars, of Allegheny Health Network, explain how the Urban Health Outreach program aims to improve health equity for individuals experiencing homelessness.
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Atypical Marker Expression in T-Cell Acute Lymphoblastic Leukemia/Lymphoma
May 15th 2024Two unique case reports highlight the diagnostic challenges and critical importance of comprehensive immunophenotyping in cases of T-cell acute lymphoblastic leukemia/lymphoma that present without typical immaturity markers but with rare γδ T-cell receptor expression.
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After the ACA Expanded Health Care Access, 2024 Elections May See Voters Demand Affordability
May 15th 2024At the spring conference of the New Jersey Health Care Quality Institute, speakers discussed how health policy, affordability, and transparency may play a role in voters’ decisions.
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